Wednesday, April 16, 2008

FRUSTRATED

Many of you know that John William was scheduled for a series of MRI's and an EEG today.
We have been waiting 4 long months to get in and we are so glad the day has arrived. I must say I dread testing days, though I appreciate the information obtained from them, I sleep very little the days leading up to them. Anyway, we started the day very early and had an hour and a half drive to the hospital and an hour wait, only to be told that they did not have enough nurses on staff to administer the sedative medication needed for testing. Trying to process this information on very little sleep, no food, no caffeine, not to mention the pulsing beat of the tension headache I had going....I almost killed the messenger! WE ARE IN A HOSPITAL AND YOU HAVE NO NURSE??!

They suggested trying to MRI without sedation. (This would've required JW to hold COMPLETELY still for 3 hours...do toddler's do that?) Brave little boy that he is, he gave it a shot but as soon as they put headphones and binocular goggles on him...the tears and screaming started. Scared the daylights out of him and he never stopped asking to go home until we got within a few miles of home.

So, we return for another go of it on Monday. This time he will know where we are and what he is in for, so there is sure to be an extra fear element. I'm concerned that because they are trying to squeeze him in the schedule, there is a gap in time between the 3+ hours of MRI's and the time they can get his EEG done. This could result in him being sedated for over 6 hours!
I'm so frustrated!

Oh, how I wish that he didn't have to go through this.........sure wish it could be me instead.